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When I was in the third grade, I learned about this very cool thing called a bike-a-thon. I could take my bike and by just riding it help cure cystic fibrosis, a disease that I had no idea what it was, but sure sounded bad. In my idealistic eight year old mind this just seemed like it just having fun for a good cause, so I signed right up and went for it.
My second grader sister heard about the same thing and decided she had to do it as well. That was a pain. This meant every pledge I went to get had to pledge equally to the both of us by royal decree of my mother. I was irritated, but we both pluckily canvassed the small town of under 1,000 inhabitants, all of whom knew our family, and gathered pledges. I knew no fear in those days, heck, I didn’t even realize knocking on doors asking for money is annoying in my innocence.
Pledges were made per mile and so the first question we were asked was how many miles we were going to bike. I pulled the number twenty off the top of my head as it seemed a nice even number. I still remember some of the amused, patronizing smiles as these wordly wise adults then penciled in their donation. Our pledges piled up and we ran out of room to contain them, requiring extra pledge sheets. What’s the harm in donating to a couple of naive kids playing grown up biking on their Schwinn’s after all. Read the rest of this entry »
It’s BAACK. It took all of a day longer to fill, but I hope you find it worth the wait. Without further delay, here is the very best of the internet to have crossed my eyes in the past 8 days. Read the rest of this entry »
Becoming the parent of a child with a genetic disease is a harrowing experience. This is likely more true today than it has ever been. We are hardwired to want the best for our children. Discovering they have a life altering condition pulls the rug right out from under parents. Discovering that the very genetic blueprint they passed on to the child is the problem makes this “act of God” personal. Suddenly, it is your fault.
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