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6 He that ascended up on high, as also he descended below all things, in that he comprehended all things, that he might be in all and through all things, the light of truth;

7 Which truth shineth. This is the light of Christ. As also he is in the sun, and the light of the sun, and the power thereof by which it was made.

32 And ye shall know the truth, and the truth shall make you free
John 8:32

We are emerging from an age that put value above all else upon the ideal of truth. But what exactly is truth? Is it absolute? beauty? freedom? enlightenment? facts? data? reason? principles? unchanging? Is something that is true for one person necessarily true for another? Is truth for ourselves at one point in time necessarily true to ourselves at another point? The terms modernism and post-modernism are used and abused in these kinds of arguments all the time. I am not sure what these terms mean exactly. To a certain type of person post-modernism is moral relativism and the devil, while to another type, modernism is rigid, unyielding, black and white thinking in absolutes. In the end I think both sides are largely talking past one another and caricaturing the other side. This is not my desire. I just want the truth.

What’s that you say Jack, “The truth!? You can’t handle the truth!” Perhaps.

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Becoming the parent of a child with a genetic disease is a harrowing experience. This is likely more true today than it has ever been. We are hardwired to want the best for our children. Discovering they have a life altering condition pulls the rug right out from under parents. Discovering that the very genetic blueprint they passed on to the child is the problem makes this “act of God” personal. Suddenly, it is your fault.

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I work up close and personal with disability everyday. When people found I was going into child neurology their first question was often, “why”? I often hear about how it’s too sad or too depressing.

Fellow physicians struggle with the fact that there often isn’t anything we can do to fix severe cerebral palsy or neurodegenerative disease, to name but a few. There is something in our nature that makes us shrink from the deformed and debilitated. Read the rest of this entry »

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