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I cannot imagine anything harder than the suffering I see too many parents go through when their child has a fatal, progressive neurodegenerative disease. With the diagnosis they lose their child’s future just as suddenly and unexpectedly as if they were hit by a Mack Truck. However, instead of the process being over in any brief period of time, it is often drawn out over many years.
Leukodystrophies, Mitochondrial disorders, Inborn errors of metabolism, Rett Syndrome, Duchenne Muscular Dystrophy and a host of other heartbreaking diseases are a death sentence, only one that is indefinitely prolonged. In all these examples the child gradually loses abilities he or she once had. Read the rest of this entry »
In continuing the theme of dignity, disability, and respect from my last post I found this incredible video which makes my point ever so eloquently, so prop your feet up, sit back, and prepare to free your mind for the predicament that is the Euthenasia Blues. Enjoy
And now, the moment you have been waiting for all week. No– not that moment. It is the moment when yours truly presents the best, the brightest, the most informative, interesting, and entertaining of my sojourn on the internet. Today I have gratitude, no worries, losing recognition of our own face, the God of the future, marrying biblical sisters, Scrubs and the end of life, and a football team without a home field, and eloping six year olds, amongst a lot of other really, really good stuff. So dig in and enjoy the best of the internet (I could find)- Read the rest of this entry »
Mind, Soul, and Body 
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